Thanks again for your interest in the Kasey Altman hackathon to find the best next treatment for this rare cancer patient. This is our weekly update (#13), especially for those who were unable to join us in person on Thursday (August 26).
Kasey finished her frontline treatment on August 25 and rang a bell to celebrate! You can see a video of the joyous event here. Kasey will start treatment in a clinical trial of a personalized neoantigen vaccine in San Diego in late October.
Delsee reported that they are getting ready for Kasey’s West Coast stay of six to eight months, making sure records and everything she needs will be ready in San Diego for her personalized neoantigen vaccine clinical trial. The peptides were ordered. Between now and October Kasey will get a liquid biopsy and scans to monitor progress. We discussed the specific tests that can check for Kasey’s unique mutations.
We also discussed the prioritization panel and process to be held on Sunday, September 12, mostly with clinicians and researchers.
Delsee thanked Ciitizen again for their efforts to get Kasey’s medical records together for sharing, and Tessa Marcus for creating an article that is going to summarize this hackathon for a medical journal. We had a meeting with Certis to discuss the possibility of a precision oncology toolbox that can be shared and how to go about that, such as organizing a panel to talk about the various diagnostic options that are available to patients.
Please see the recordings below for more details.
In Closing: Our Requests
Any advice for publicizing the work of the hackathon and the issues it has raised?
Interested in engaging in a discussion of diagnostic tools that patients should be aware of?
Any comments on the discussion documents for the prioritization meeting? (Please comment on Slack or via email.)
Best,
Kasey Altman, Delsee Altman, Lupe Montes, and Brad Power